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Mom's Ok, She Just Forgets: The Alzheimer's Journey from Denial to Acceptance
Evelyn D. Mclay , and
Ellen P. Young
Manufacturer: Prometheus Books
ProductGroup: Book
Binding: Paperback
 General
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Similar Items:
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Alzheimer's from the Inside Out
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Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member or Friend
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The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life (4th Edition) (Mace, The 36 Hour Day)
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The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life (3rd Edition)
ASIN: 1591024692 |
Book Description
Foreword by Barry Gordon, M.D., Ph.D., Johns Hopkins Medical Institutions
· "Mom's OK, she just forgets."
· "Dad only drives to the grocery store."
· "A support group? I don't need one."
· "My husband is not ready for day care."
· "Nursing home placement? Never!"
These and similar expressions of denial are often heard in families struggling with the difficult challenges of Alzheimer's or dementia in a loved one. Denial may seem to be an acceptable coping mechanism when faced with a disease that has no cure. But in fact the failure to accept reality can work against the welfare of the person suffering from a disease that causes dementia, making a bad situation worse for the whole family.
In this reassuring and very helpful handbook for families, experienced caregivers Evelyn D. McLay and Ellen P. Young suggest various behaviors, tools, and techniques for moving beyond denial. Real people who have faced the many problems brought about by Alzheimer's speak out, with hope, from these pages. They share their journeys from denial to loving action and an improved attitude that helps them deal with their personal plights.
Separate chapters address the issues of caregiver burnout, developing communication skills, challenging behaviors that "push your buttons," when to remove driving privileges, day care for the elderly, deciding on long-term care, and the need for acceptance.
Without minimizing the daunting challenges of Alzheimer's and dementia, the authors stress the importance of remaining positive and appreciating the moment while acting in the best interests of loved ones.
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- Effective Caring
- Practical, Heartwarming Help for Families and Caregivers of Alzheimer's Patients
- Tools for Alzheimer's Caregivers
- A MUST read for everyone, with or without Alzheimer patients
- Please Take Me Home Before Dark
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Please Take Me Home Before Dark: One Family's Journey With Alzheimer's Disease
Billie J. Pate , and
Mary Pate Yarnell
Manufacturer: Hillsboro Press
ProductGroup: Book
Binding: Paperback
Eldercare
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ASIN: 1577363892 |
Book Description
Please Take Me Home Before Dark provides inspiration, information, and support to family members and caring professionals of Alzheimer's patients (and other forms of dementia). Using a writing style that is warm, yet instructive; serious, though sometimes humorous; and highly personal, yet medically reliable, the authors share their mother's progression through Alzheimer's to benefit others facing the same situation. Although intensely personal, the book also magnifies meanings and provides practical help. Each chapter includes a sensitive, poetic introduction; an empathetic and informative description of the Alzheimer's process; poignant personal illustrations; and at-a-glance sections to help readers map the patient's journey and provide loving care with hope and confidence.
Customer Reviews:
Effective Caring.......2007-03-08
Two sisters, lovingly and effectively caring for their mother, have provided a vast storehouse of guidelines in 82 pages. From the resources to the "Caregiving Caplets" the changes they saw in their mother are invaluable for others with Alzheimer's. This is a hour by hour account, full of honesty, searching, and committment... a major contribution to the field.
Practical, Heartwarming Help for Families and Caregivers of Alzheimer's Patients.......2007-02-05
"What do I do now?" is often the painful question posed by families and caregivers faced with the evidence of a decline in the mental, emotional and physcial capacity of a loved one. The deeply inspiring telling of the story of this family will help others find ways to answer that question. It is beautifully written with a sensitive understanding of a mother slowing losing herself to a dreaded disease. The Caregiving Caplets provide easily understood suggestions for coping with the disease while attempting to maintain the dignity of the loved one. I highly recommend this practical and heartwarming book!
Tools for Alzheimer's Caregivers.......2007-02-01
Three tools in the book prepare Alzheimer's caregivers for their own difficult journey. (1) The poetry demonstrates a prepared family's plan to adapt to specific patient changes. (2) The comprehensive lists of expected patient changes and (3) the matching lists of needed caregiver adaptations guide families in developing their own response plan. I have been close to three families while they made the long Alzheimer's journey. I recall how they were surprised when they encountered the patient changes described in this book. I also recall their frustrations in dealing with those changes. Knowing beforehand what to expect prepares caregivers to plan their own responses rather than reacting out of raw feelings. I bought a copy to give to a family beginning the journey.
A MUST read for everyone, with or without Alzheimer patients.......2007-01-22
Many folks don't have an understanding of how to preserve the dignity of their loved one in this condition. The many suggestions in this book provide that understanding. The poetry in each chapter makes such a sensitive, caring response to the Alzheimer's patient. The book is full of depth, insight, and understanding - said in simple and practical ways!
Please Take Me Home Before Dark.......2007-01-22
An outstanding true story of a loving family whose mother suffered with
Alzheimer's disease. Daughters tell of many difficult situations as well as tender moments they shared with their mother. Caregiving Caplets give practical hints that will help others as they relate to someone with this disease. I immediately ordered five copies to share with family members and friends who are coping with victims of Alzheimer's. MLH
Book Description
As more and more people are discovering, Alzheimer's disease is the worst kind of thief. Over time, it robs those who suffer from it of the treasure of their memories and the sharpness of their minds. In "The Long Good Night" Daphne Simpkins chronicles the slow, sometimes heartbreaking decline of her father from the disease, but also contradicts the prevailing opinion that caregivers can experience only suffering and chaos during this difficult season.
As Simpkins writes about what she calls her father's "disappearing act," she illuminates the tremendous toll that this disease takes. "Alzheimer's doesn't happen to one person," she explains. "It claims the community of people who love the person with the disease. The care is constant, the demands profound." But her book is far more than a recounting of the long journey into the deep night of the disease. It is a loving memoir of a good father and a good man. It is a powerful portrait of a close family whose bonds are strained but ultimately strengthened by the challenge of caring for him. And, perhaps most surprisingly, it is a remarkably uplifting account of that experience.
The grief in the tale that Simpkins tells is balanced by love, faith, hope — and humor. The humor arises naturally, almost miraculously, out of the stories Simpkins tells, a series of vignettes about her family's daily life. Alzheimer's is admittedly a dark subject, but Simpkins brings as much natural light and levity to it as circumstances allow.
"The Long Good Night" is "a memoir about love rather than an elegy about a disease," Simpkins says. It will give caregivers cause for honest hope, and its many other readers a wonderfully nuanced story of love and laughter amid the ruins of illness — a story that both illuminates the tragedy of Alzheimer's and powerfully transcends it.
Customer Reviews:
A Memoir of Magnitude.......2003-12-23
Someone has said, "It's easy to write. You just sit down at the keyboard and open a vein." Mrs. Simpkins opens a vein and her heart in "The Long Good Night." At the core of this heart the reader will re-discover a need and a secret. The need is love and the secret in love's definition. Absent of pride and praise, Simpkins simply tells the truth regarding her father's Alzheimer's and the telling demonstrates 1 Cor. 13 in action. The episode,indeed,is a long journey, a journey of pain and frustration. It is also a memoir of love, loyalty and laughter. So, take this journey with Ms Simpkins. Cross some narrow bridges. Pass through a tunnel or two. Encounter more than one detour. When "The Long Good Night" is over, bask in the Son shining through. There could be no better refreshment or reward.
The Long Good Night: My Father's Journey into Alzheimer's.......2003-12-16
A must read..... I couldn't put it down.... I laughed, I cried then laughed some more! Ms. Simpkins at her best!
I get it!.......2003-10-25
Ms. Simpkins has a real talant for storytelling and keeps the reader engaged throughout this journey. If you have a friend going through the struggles of dealing with Alzheimers, this book will give you a window into their new world, the good the bad and the ugly. If you have not experienced, it but know friends that have, you know how helpless you feel watching them in this new world, and you will be able to let them know that you are thinking about them and praying for them and above all -- you "get it."
heartwarming and inspirational.......2003-10-12
This book is a heartwarming story which spotlights the struggles of a family hit with the difficulty of alzheimers. Ms. Simpkins is able to engage the reader in laughter at the awkward moments the disease inevitably brings to life expereinces but she also enables us to feel the pain of her father's slipping away into another, unfaamiliar world. This is a must read for anyone whose home has been touched by this disease.
Customer Reviews:
A complete, definitive, and thoroughly "user friendly" guide.......2005-03-09
Carol Bowlby Sifton is the founder and editor of the journal "Alzheimer's Care Quarterly". In Navigating The Alzheimer's Journey: A Compass For Caregiving, she draws upon her many years of personal experience and professional expertise to provide caregivers for Alzheimer victims a complete, definitive, and thoroughly "user friendly" guide to caring for men and women in all degrees of Alzheimer's progressive deterioration. Readers will be expertly provided with information on how Alzheimer's disease and similar dementias affect a loved one; how to best communicate and interact with an Alzheimer's sufferer; how to manage activities of daily care; why challenging behaviors occur and how to respond to them; how to arrange the physical environment to best support everyday functioning; how to capitalize on remaining abilities; when and how to get help; and what plans to make for future care needs. If you have someone you love that is suffering from Alzheimer's, or caring for someone who is, and are carrying a personal responsibility for your own family member's struggle with Alzheimer, then give a careful reading to Carol Sifton's Navigating The Alzheimer's Journey -- it can improve the quality of the care you provide, while saving you from unnecessary physical and mental stress, and avoiding emotional burnout.
Excellent Resource!.......2004-12-17
Wow-Carol has written a fantastic resource, very comprehensive, on caregiving and Alzheimer's Disease! I wish it had been available for me when I was navigating the complicated maze of eldercare for my parents-both with the beginning of Alzheimer's, but I didn't know it yet. Knowledge is power-don't get caught unprepared. This book can save you a lot of time, money and a fortune in Kleenex. If you have aging loved ones who are having memory problems, or any odd behaviors that you find yourself questioning--here's your roadmap and compass!
Jacqueline Marcell, Author, `Elder Rage' and Host of the `Coping with Caregiving' radio program.
Customer Reviews:
Moving, touching, inspiring book.......2005-12-12
First let me say that Patti and Ray Grose are close friends. My wife and I have known them for over twenty years and we can say that Patti has written openly and honestly about who she is and how caring for a relative with Alzheimer's has affected her life.
In this, her first book, she writes with the clarity and flow of an accomplished author. Her style is straightforward and clear. Her first-person account of being her mother-in-law's primary caregiver is compelling. It is a fast read and, surprisingly, a page-turner. I was moved by the openness and vulnerability that Patti displayed in her description of events. I was touched by the deep love and heartfelt care she showed her mother-in-law, especially during very difficult times. I was inspired by her determination to do everything possible to assure the health and well being of her husband's mother.
This book was an eye-opener. It was the first time I became aware of the level of difficulty that a family faces when dealing with a loved one who develops Alzheimer's. I found the book so helpful in understanding the toll that Alzheimer's takes on the patient's family. Patti even wrote out a list of helpful hints at the end of the book. On another level the book exposed me to the denial I experienced in not understanding what our good friends were going through, why they were not available for meetings, for social events.
In my opinion, this book is a must-read for any family or caregiver associated with an Alzheimer's patient. In her preface Patti is clear about her goal, "Hopefully, it will bring a message of understanding, hope and worthy advice to the reader." She accomplishes that mission.
Book Description
This book is one of the best case histories of Alzheimer's Disease that you will find and it is the only book about home care of an Alzheimer's family member available today.
There are 4 million people currently with this illness, 80% of them are cared for at home.
Thomas V. Murphy struggled for 14 years with this illness and was maintained in his home by his wife, Beverly, until he died. Beverly speaks of how she grew into her role as caregiver and how she solved the many problems that faced her as the demands of his illness increased. She also speaks of the bias she experienced once her husband began to lose his abilities and she speaks of the grieving, the humor and the strength she found as she faced the challenges one by one. You will laugh and you will cry but you will not be bored by this book. Her wit, realistic attitude, and common sense come through as she speaks with loving respect about their experience. The ever present love story is further enhanced by her use of the lyrics of old love songs which begin each chapter. She is a professional with 25 years experience working with profoundly handicapped people and who has had the unique experience of also being a caregiver. This is not the usual caregiver book about a dreadful illness but is a love story from beginning to end.
Customer Reviews:
A Story of Unconditional Love.......2002-02-13
In a 348 page book that reads like a novel, Beverly Bigtree Murphy tells a love story-- of a lifetime of love shared in a few years with her husband, Tom Murphy, as he began his descent into Alzheimer's disease. Soon after their whirlwind romance culminated in marriage, Tom's successful career began to decline as the disease they would later come to know as Alzheimer's began it's destruction of his brillant mind and charismatic personality. Beverly soon found herself thrust into the role of caregiver for her beloved new husband, and into legal battles concerning his care, as well as going in circles in search of medical help before the diagnosis of Alzheimer's. The emotional turmoil caregivers know well is shared in Beverly's story, along with practice advice from her as a professional as well as a caregiver. Her book also incudes the stages of Alzheimer's, an annotated list of books Beverly found most helpful, and other suggested reading on grief and positive thinking as well as Alzheimer's and caregiving. Beverly's Web Site at ... offers practical suggestions to help with incontinence care and for dealing with challenging behaviors as well as information about her book. He Used to Be Somebody, is a story of unconditional love-- a love that did not end even through all the turmoil brought about by Alzheimer's, and the old love song lyrics at the beginning of each chapter are just one more evidence of this, weaving together the story of Tom and Beverly Murphy and their unending love.
Customer Reviews:
Must be read by anyone who loves his or her mother..........2003-01-03
Joyce Dyer is a masterful writer, and In A Tangled Wood is some of her very best work. Though many find the subject of Alzheimer's Disease to be taboo or distasteful, Ms. Dyer presents her family's journey through her mother's AD years in such loving and personal terms it is impossible to feel anything but tremendous respect for everyone involved.
Dyer uses cunningly descriptive metaphors throughout the book, as well as well-placed bits of comic relief in what could have easily become a much too depressing story. She reveals enough of herself personally to allow the reader to understand how she and her mother developed the relationship they had. While this is a story about a woman who has AD, it's also a story about a daughter's relationship with her mother - regardless of any illness. It reveals what we children can and will do for our parents when the tables (ultimately) turn.
It is a tale of courage and faith, of patience and hope, of acceptance and love.
Personal Account Makes the Difference.......2002-01-05
Ms. Dyer's account of her own mother's illness is really what made the difference for me in this book. I am not touched by alzheimer's disease yet, so I have no basis of engagement or interest. But something about this book told me I'd enjoy it, and I was right.
Ms. Dyer's MO is to simply present her story about her mother intertwined with the stories of other people in the home with her mother. She reflects on her mother's past, on their shared pasts, on her own past. She doesn't ever get overly weepy, but Dyer does present her feelings as her mother decays further and further away from her true self. Overall, though, you feel that Dyer was happy to be able to experience this trying time with her mother, and you get a glimpse of the strength that it must have taken to come back to the home each day.
It's clear that writing about her experiences is therapy. But reading about them is therapy, too; it forces you to think about "something else," something more grave than whether you should handwash that plate and whether the lawn needs another cut. In reality, Dyer reveals many issues of the basic human condition that are grounds for thoughtful discussion and planning.
I enjoyed every bit of the book. The personal account format really drew me in, and the reality and emotion kept me reading.
The best book I've read on the subject of Alzheimer's.......1999-08-08
I've read them all and this is the best. Don't be afraid to read it thinking it will be "depressing". This book is uplifting, funny and very human.
Average customer rating:
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Journey With Grandpa: OUR FAMILY'S STRUGGLE WITH ALZHEIMER'S DISEASE
ROSALIE HONEL
Manufacturer: JOHNS HOPKINS UNIVERSITY PRESS
ProductGroup: Book
Binding: Hardcover
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Accessories:
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Braun IRT 4020 ThermoScan Ear Thermometer
ASIN: 0801837219 |
Customer Reviews:
Good book.......2001-02-20
The author is my grandma and there are some paragraphs about me.
Book Description
This is a book for lay people - those who live with Alzheimer's in their family. The book focuses on family relations as impacted by the illness and as a source for strength and coping. The book helps readers navigate through the experiences of dementia with the help of a phase model of Alzheimer's - a map which describes the common challenges faced by families from the very first symptoms to the end of life. It provides concrete suggestions for tapping family strengths to help cope with the special challenges of dementing illness.
Customer Reviews:
Helpful book.......2007-06-01
I teach in a family practice medicine program where young doctors are searching for ways to minister to families caring for patients with dementia. This book is very helpful because it gives perspective to the decisions families must face in this hard journey. Dementia by its very nature creates a sense of isolation - both for the patient and for the family. In the best of all worlds, the family will find a support group to attend. However, sometimes it is hard to take that first step. For families who are not ready, this book provides a good beginning place because it validates the experience of the family. There is also a wonderful bibliography at the end.
Product Description
Helen Winter LaCaze was a bright, effervescent and independent woman, recently retired from a corporate career, living life to the fullest. Who would ever expect to worry about her? Then, it began. Something was different, strange and unfamiliar in her gradual, noticeable odd behavior and withdrawal from family and friends. Becoming puzzled, then deeply concerned about the changes in her mother, Christine Fournier began the process of uncovering the mystery. Her mother's diagnosis of Alzheimer's Disease took her and her mother on a journey that would change them forever. The author hopes that this account of her family's experience with Alzheimer's Disease will help others learn and cope with the "living loss" of their loved ones. In memory of Helen Winter LaCaze, proceeds will be donated to Alzheimer's research.
Books:
- Montessori Play And Learn: A Parent's Guide to Purposeful Play from Two to Six
- Mother Angelica's Little Book of Life Lessons and Everyday Spirituality
- Nectar in a Sieve (Signet Classics)
- Nemesis: The True Story of Aristotle Onassis, Jackie O, and the Love Triangle That Brought Down the Kennedys
- No Easy Answers: The Learning Disabled Child at Home and at School
- Nurture by Nature: How to Raise Happy, Healthy, Responsible Children Through the Insights of Personality Type
- Parents as Partners in Education: Families and Schools Working Together, Sixth Edition
- Promoting Health And Emotional Well-being in Your Classroom
- Questions For My Father: Finding The Man Behind Your Dad
- Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Integration Issues
Books Index
Books Home
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- Progress, Poverty and Exclusion: An Economic History of Latin America in the Twentieth Century
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- Self Portrait Che Guevara
- Essentials of Accounting, Legal Office: Practice Set
- Imperfect Justice: Looted Assets, Slave Labor, and the Unfinished Business of World War II
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